Wednesday, February 20, 2013

celiac and autism

***I'm reposting my facebook rant here, should anyone need to bookmark it for information***

FINALLY!!! I have said this for YEARS! Real research is coming out saying, "hey guess what, we're probably misdiagnosing a lot of kids with autism and add/adhd who really have Celiac!!" March/April 2013 Issue of Simply Gluten Free Magazine, by Dr. Vikki Peterson of authored the article. There are multiple studies listed but the main thought is, "Research shows the actual condition creating ADHD or autism-like symptoms is factually the presence of celiac disease or gluten sensitivity. In other words, gluten intolerance can so mimic ADHD and autism that a misdiagnosis can occur."

We've come a long way in progress for children with Autism and spectrum disorders. But we still have a long way to go. What if we are missing a huge chunk of children, who really only need the GF diet? Maybe they don't need countless hours of therapy or invasive testing and evaluation? What if they really just need the GF diet?? I'm not saying every child diagnosed with Autism is really Celiac. But why not test? Why not TRY the GF diet, because if it's Celiac, it's going to work fast.

We've long known for years the connection of leaky gut to autism, the gut brain connection. I've said for years there will one day be such a thing as Celiac Induced Autism. Eli is living proof, once gluten was removed, he developed completely normal. If I reintroduce it, he completely regresses. This is not a coincidence. This is a connection, a REASON he was so developmentally delayed and so fast (within months of introducing gluten at age 12 mos). If you know a child with autism, have a child with autism, TRY THE DIET! IF you have a child with ADD, ADHD, why not TRY the diet? Versus incredibly toxic meds for life? Why not try a natural change of eating?

Here are the things I commonly hear about GF diet: "My child is so picky already! What will he eat?" Yes, guess what, my child ate NOTHING. It was the biggest thing we battled with. It took years but he eats now. Guess what, if they have autism, they will likely be picky whether you eat GF or not. So let them be picky with GF food.

"Gluten free food is so expensive! What will we do?" How much do you spend on docs? Therapies? How much does your MENTAL ANGUISH cost you at your child driving you insane? Isn't the price of food worth that? Shop around, buy in bulk, buy with other GF people! Join a Celiac support group or Autism support group and buy in bulk with them! Each foods NATURALLY GF like fruits, veggies, meats, rice, etc.

"What if it doesn't work?" It might not. It really, truly might not. If your child has Celiac, whether with or without and ASD diagnosis, the GF diet will heal their body and help their mind. If your child does NOT have Celiac, but DOES have Autism, it MAY help. Many kids with autism but who are not Celiac, do benefit from the GF (and often Casein free diet). But many do not. We don't know all the whys and hows. But why not TRY!?

 I don't say all this to minimize the reality that there are far too many children with Autism around. I say these things to encourage anyone to TRY the GF diet if you or someone you love may be a good candidate for it. I say these things to encourage you to think outside the physician imposed box and ponder, "What's really good for my child?" What worked for us, may not work for you. But what IF, what IF, your child with Autism is really just a severe case of Celiac. That one diet change could alter his or her life FOREVER. Because guess what, the GF diet is not a prison sentence. It's not the END of eating certain things, it's the beginning of health, energy, vibrance and a new life. Yes, it stinks to not always eat what others eat, but there are SO many good choices out there and so much improvement in the GF lifestyle, it's NOT THAT BAD!

Eating gluten free versus a lifetime of the hell I went though pre-diagnosis of Celiac? Hands down, GF food all the way.

You will never, ever know, until you try.


***These are MY Opinions! While I do chair the local Celiac Sprue Association, these are my personal thoughts. Please feel free to ask me anything about Celiac, even the gross stuff, and please refer to for more information about Celiac Disease.***


Pat said...

Just sent this post to my 3 1/2 year old grandson has a problem with gluten and the whole family has all been dealing with keeping him gluten free.

mamaslittlemonkeys said...

Let me know if I can be of any help, Pat, or anyone. It's a long, hard road but once you get used to it, it works!

Ms. Moo said...

Kuddos to you in figuring out the problem and being proactive in modifying diet to fix the problem. Soooo much better than popping pills the docs are so quick to prescribe.....most of the time they don't work or create even bigger problems.

Catherine said...

what causes autism? there are lots of it. that's why we need to be aware of it. we can get autism even right now.


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